COVID-19 Safety This Holiday Season

The holiday season is here women preparing food holiday seasonand with it, questions and concerns about celebrating safely while COVID-19 continues to spread. While the safest option this year is to celebrate with only those in your household and virtually “connect” with loved ones, the CDC has released new guidelines for those who wish to gather in person.

While we know that large gatherings increase the risk of spreading the virus, there is also a risk of spreading the virus in smaller family gatherings. It is best to keep activities limited to those in your household, your social bubble (which may include a caregiver), or others if social distancing can be observed.

Traditional holiday activities like parades, shopping, and other large events pose a high risk. Close physical contact and mixing with people outside of your social bubbles make it easier for the virus to spread. Instead, try shopping online or ask family members to order items for you so you can avoid crowded stores. Other low risk activities include watching sports games, parades, and movies from home. However you choose to celebrate, look at the COVID-19 positivity rates in your community. From this information, decide what best suits your family. And if you go out, always wear your mask!

Lung Disease and COVID-19: An Update

We invited Dr. Khalilah Gates, a pulmonologist from Northwestern Medicine, to share her experiences as a front-line provider during the COVID-19 pandemic and how the virus has affected people living with COPD. Dr. Gates discussed what we know so far about COVID-19 symptoms and testing, and the best prevention practices for people living with lung disease like COPD.

man with lung disease during COVID-19Common COVID-19 Symptoms

The most common COVID-19 symptoms people experience include cough, shortness of breath or difficulty breathing, fever, chills, body aches, headache, sore throat, new loss of smell or taste, and diarrhea. Symptoms vary by person, so it is important to monitor your health. Symptoms can occur between 2-14 days after exposure to the virus. Some people who recover from coronavirus have had longer lasting symptoms, including fatigue and cough.

COVID-19 Tests

There are two types of tests that are currently available: viral tests and antibody tests.

  • Viral tests: Collected via nasal swab (most reliable), oral swab, or saliva. Used to
    diagnose an active COVID infection.
  • Antibody tests: Collected through blood draws. A positive antibody test suggests you
    were exposed, but we do not know that having antibodies protects you from becoming
    re-infected.

Prevention Practices for People Living with COPD and Other Lung Diseases

While people living with COPD are not more at risk for getting COVID, there is an
increased likelihood of having a more severe case of the virus. Dr. Gates suggests the
following for people living with COPD:

  • Continue your home medications—now is not the time to stop taking any providerprescribed
    medications that help you manage your COPD.
  • Practice COVID-19 specific guidelines, which include:
    • Wearing a mask. It is very important to wear a mask that covers your
      mouth AND nose when out in public. If you are having trouble breathing
      in your mask, experiment with different fabrics, materials, and types of
      masks. If you continue to have difficulty breathing in a mask, you may
      need to limit the activities you do that require you to wear a mask.
    • Clean your hands often. Wash your hands with soap and water for 20
      seconds. If you do not have access to soap and water, use alcohol-based
      products.
    • Practice social distancing. Limit contact with people and stay six feet
      away from others when possible.
    • Clean and disinfect surfaces often.
  • Stay as active as possible. Take walks whenever possible and visit the RHA website for
    tips on exercise while staying home.
  • See your doctor. Hospitals have protocols in place to minimize transmission of COVID-19,
    but many doctors now have the option to use telehealth (which include video visits and
    phone calls).
  • Stay up to date with your vaccines, including the getting the influenza vaccine. Now is
    the right time to be getting your flu shot.

If you would like to learn more about the relationship between COPD and COVID-19, view one of our webinars on-demand.

Respiratory Therapists Are Front-line Heroes

healthcare workersThis year was a challenge for everyone. As we think about how COVID-19 has affected our families, health, and way of life, we also think about the unique challenges people living with lung disease have faced. Pulmonary rehabilitation programs offer important support for people living with chronic obstructive pulmonary disease (COPD). Through exercises, peer support facilitation, and more – every day heroes known as respiratory therapists help people manage their disease and live more fulfilling lives.

As COVID-19 began to spread, critical programs like these were paused. Many respiratory therapists moved to treatment teams to help people recovering from the virus. Their work, and that of so many healthcare workers, inspires us. It gives us hope that we will overcome the pandemic.

Unfortunately, the absence of these programs left the COPD community without easy access to resources they count on to breathe easier. Respiratory Health Association was ready to help. With the initial support of pulmonary rehab leaders, we are launching Support for Transitioning Rehabilitation and Exercise Now Going to Home (STRENGTH). This program offers exercise routines and breathing tips COPD patients can use at home.

In an uncertain time, we bring hope to people living with COPD.

We look forward to the day when respiratory therapists reunite with their patients and can continue this important care in-person. Until then, we will develop and share resources to help people living with COPD stay safe and continue pulmonary rehab at home.

Over the years, your support has helped us fight for a future free of lung disease. As we continue to address the changing needs of our lung health community, we say thank you for your support.

If you are able, we ask you to support RHA this giving season. Give today to help us continue important lung health initiatives in Illinois. Together, can bring hope to people living with lung disease.

Respiratory Therapists are Lung Health Heroes

This week is Respiratory Care Week – a time to celebrate respiratory therapists who work tirelessly helping those living with lung diseases breathe easier. Whether testing for lung function in a young child with asthma, or helping someone with COPD use an oxygen tank, respiratory therapists give people the power to take control and live to the fullest.

Their work is especially important considering how common lung diseases are in the United States:

• 25 million people live with asthma
• 16 million live with COPD and another 16 million have undiagnosed symptoms
Lung cancer is the leading cause of cancer deaths among men and women

Respiratory therapists help people better understand and manage their illnesses, allowing them to live without distraction from symptoms. They also provide treatments to those in need of care, improving lung health and way of life.

For respiratory therapists like Rose Riggins, CRTT of AMITA LaGrange in Illinois, it’s way more than a job – it’s getting to know people, their lives and their stories.

“Working with the patients throughout the years has made them feel like family,” she says.

If you are living with lung disease, here are some of respiratory therapists’ most common tips for preventing additional complications and living the healthiest way possible:

• Get a flu shot every year to prevent additional complications of lung disease
• Live smoke-free and avoid secondhand smoke or close contact with smokers
• Eat right to maintain the most energy for staying healthy
• Avoid chemicals – like scented candles and harsh household cleaners – that may cause lung flare-ups
Monitor air quality and avoid the outdoors on poor air quality days

Join RHA this week and every day in saying thank you to respiratory therapists everywhere!

To learn more about becoming a respiratory therapist, view these resources.

Penny Runs for a Future Free of Lung Disease

Story by Amanda Sabino

Penny runs in her 50 States Marathon Club shirt. Members of the organization all share the goal of running a marathon in every U.S. state.

When Penny Wilbanks started a running program 15 years ago, she never imagined where it would take her. Now, after completing 18 marathons in 15 states, her goal is to run one in all 50.

“I truly have a passion for it,” she says.

Penny started running during junior high in Texas when she joined the track and cross-country teams. It was good training for soccer, which she played regularly into college.

While she stopped running for much of her adult life, motivation to restart a fitness routine led her to Google search “solo sports” in 2005. Shortly after, she attended an informational meeting at a local running store.

After running half marathons for 13 years, she decided in 2018 to run her first marathon — the Jack and Jill Marathon in North Bend, Washington. And she hasn’t looked back. “I knew I wanted to run in Chicago for 2020,” Penny shares. “And when I was looking for a charity to run for, Respiratory Health Association stuck out.”

For Penny, lung disease is personal. In 2008, she noticed running became more of a struggle. Often, she would have to stop and catch her breath. One day, she collapsed while training on a nearby track.

Penny was originally diagnosed with exercise-induced asthma. When she went to her family doctor, he prescribed an inhaler. She didn’t leave home without it until the possibility came up that she may not have asthma. This led to an echo cardiogram for valve problems in her heart which showed nothing. A scan revealed spots on her lungs. Although grateful when doctors ruled out lung cancer, the cause of her recent breathing troubles remained a mystery. Doctors believe she has weakened lung muscles, and knowing the value of good lung health she continues to see specialists.

Penny and her husband at a Dallas Cowboys game.

Penny’s lung disease story is just one of many in her family. Her grandparents both died of lung cancer –

her grandmother only three weeks after diagnosis. Her aunt lives with chronic obstructive pulmonary disease (COPD). Seeing loved ones fight these battles has even led her father to quit smoking.

“Running on Lung Power Team is like running for my heart and soul – my family,” she says. “Each step is one toward healthier lungs and clean air.”

When the Chicago Marathon was cancelled this year, it threw a wrench in her plans. But as Penny puts it: “I just don’t believe in quitting.” She continues to run despite the cancellation.

This persistence defines her running style. In one particularly memorable half marathon race, she developed a giant blister that was so painful it slowed her considerably. Penny normally completes a half marathon in two and a half hours. Her husband even went to race officials when he couldn’t see her at the three-hour mark. She recalls her triumphant moment 30 minutes later at the 3:30 cutoff.

“There I came, ankle gushing blood, skipping across the finish. I just couldn’t give up until I saw the end.”

You find out a lot about her approach to life in a year full of challenges and cancellations when listening to her running philosophy: “You take that as your bad time, you take that as your licks. But you finish. Your medal looks the same as the first-place winner.”

The Chicago Marathon postponement, while disappointing, is just another challenge for Penny. She still plans to run in 2021 — and by that time,  expects to have 24 marathons under her belt. The delay means Chicago will mark the halfway point of her 50 state marathon goal. And she cannot wait to reach this milestone while running for Respiratory Health Association.

To support Penny’s fight against lung disease, you can donate to her fundraiser here.

Penny sits with the pups post race.

New Report Shows Higher Rates of Lung Disease Near Chicago’s Busiest Transit Bus Routes

For Immediate Release

September 11, 2020

Contact:

Brian Urbaszewski

[email protected]

312-405-1175

New Report Shows Higher Rates of Lung Disease Near Chicago’s Busiest Transit Bus Routes

Data Highlight Urgent Need for Electrification Across City’s Fleet

CHICAGO – Respiratory Health Association (RHA) and University of Chicago Center for Spatial Data Science (CSDS) released findings of a year-long study indicating higher rates of asthma and COPD near several bus routes and garage locations across the city of Chicago. The study, which referenced data from Chicago Transit Authority (CTA) and the U.S. Centers for Disease Control and Prevention, is the first to examine lung disease prevalence in relation to Chicago’s bus routes.

The report analyzed 125 permanent CTA bus routes, classifying seven routes with an average of at least 20,000 riders per day and covering at least seven miles as high-traffic routes. Researchers found residents living within 500 meters (about 1600 feet) of these routes had asthma rates of 11.08%, which is 8.4% greater than the overall city rate. Those living within 500 meters of these routes had a 6.69% COPD rate, 10.6% higher than overall rate across the city. Additionally, residents living closest to any of the CTA’s seven bus garages had asthma rates more than 12% greater than the citywide average and COPD rates 23.6% greater than the citywide average.

“We already know that the air pollution produced by vehicles, including the diesel-powered buses which make up most of the CTA’s current fleet, is dangerous for people’s lungs,” commented Joel Africk, RHA President and Chief Executive Officer. “The higher rates of asthma and COPD along those busy routes – where residents are some of the most vulnerable in the city – show how important it is to replace diesel buses with electric models to improve air quality and protect everyone’s health.”

The report includes recommendations for priority routes to place electric vehicles as well as potential funding sources to support needed infrastructure. It was provided to CTA officials as part of its ongoing strategic planning efforts, which also include plans to reduce pollution produced by city transit vehicles. In 2019, Mayor Lightfoot’s transition team endorsed a goal of fully electrifying the CTA bus fleet and the Chicago City Council passed a resolution supporting complete electrification of CTA by 2040.

“Identifying socially vulnerable areas at greater risk of pollution exposure remains an important area of future research in the work of environmental justice and reducing health disparities,” noted Marynia Kolak, Assistant Director for Health Informatics at the Center for Spatial Data Science. “While these associations are complex, reducing the transit dimension of traffic pollution via electrification is a critical need for the city.”

“Federal, state, and local elected officials need to dedicate the resources needed for the Chicago Transit Authority to accelerate the city’s transition to electric buses,” Africk continued, “so residents – especially those living with lung disease – can enjoy the important health benefits cleaner transportation provides.”

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 Respiratory Health Association (RHA) has been a local public health leader in Chicago since 1906. RHA works to prevent lung disease, promote clean air and help people live better through education, research and policy change. To learn more, visit www.resphealth.org.

Mia’s Story: Living with Asthma During COVID-19

Mia during our 2019 State Lung Health Education Day, an opportunity for advocates to speak to lawmakers about clean air and lung health issues in Illinois.

Mia Fritsch-Anderson, 15, is a freshman at Whitney Young High School in Chicago. She began working with Respiratory Health Association at the age of five after being diagnosed with asthma. She regularly participates in lung health education and advocacy activities in her community and throughout the Chicago area, and won RHA’s Next Generation Advocate award in 2019 for her work.

Growing up with asthma has always involved extra caution and safety measures for me, but during the COVID-19 pandemic, my lung health is constantly on my mind. When the coronavirus first started showing up in the news, I immediately clued in on the extra warnings for people with lung disease. People like me with moderate to severe asthma are at higher risk of getting very sick from COVID-19. Because of this, my family and I have taken the stay at home order very seriously. I have not gone inside any restaurant or business, or hung out with any of my friends, since my last day of school on March 16. It’s especially hard to see my peers on social media going over to a friend’s house “just for a little while,” but I can’t take that risk right now.

In a way, I think living with a chronic lung disease made it a little easier for my family and I to adjust to all the safety recommendations. Many of them we already followed daily. Because a simple cold so easily progresses to pneumonia for me (at least twice a year), my family and I have always been especially careful about hand washing and have always used disposable paper towels in the bathroom. To avoid tracking germs all over the house, we have always been a “no shoes inside” family. We’ve always worked with my doctors and pharmacists to make sure I have enough of all my daily and rescue medications at home.

Since a major symptom of COVID-19 is not being able to breathe, any shortness of breath or tightness in my chest, no matter how small, has me wondering all the time if now I’m sick. And as an asthmatic, I’m already extra vigilant about how my breathing sounds, so I’m constantly worried that I’ve caught the virus. Before coronavirus, it wouldn’t phase me at all. I’d just think I needed some extra albuterol, grab my inhaler, and carry on. I’m sure every kid and teen with asthma has the same thoughts right now.

Asthma has also helped me better understand the general public’s fears around the coronavirus, like having trouble breathing, since I’ve been dealing with it all for 15 years. Recently, a family shared with me how scared their little girls were to wear face masks, because they are different and “it feels weird.” I could instantly relate to that as a lifelong nebulizer user and was able to give them tips to help them feel more comfortable. I think those of us together in this “lung disease” club are in a unique position to help others with the challenges that come from fear around breathing symptoms.

I think a lot of kids and teens, healthy or otherwise, feel helpless right now. Since I have lung disease, I can’t get out on the front line and help in ways I’ve seen others give back, like volunteering at the food pantry or shopping for neighbors. One thing I’ve been doing that helps me give back, and alleviates that “helpless” feeling, is using my knack for sewing to donate hand sewn masks to essential workers. So far, I have sewn 500 masks to donate to all sorts of workers in my community, including pharmacists, broadcast journalists, grocery store workers, day care workers, nurses, and therapists.

If you want to make face masks for yourself or others, I put together a video of how you can do it in your own home with items you may already have on hand.

To learn more about living with asthma during COVID-19, there are several resources from RHA including tips for managing your asthma. If you are interested in joining me as a lung health advocate, click here!

Jen Runs to Be Part of Something Powerful

Written by Amanda Sabino

Jen Dorval admits her running background is not the most extensive. But for Jen, running with Respiratory Health Association’s Lung Power Team in the Chicago Marathon is about more than just the race. It’s to honor her sister, Dee, who passed away four years ago due to chronic asthma.

two young sisters sit next to each other

Dee (left) and Jen

“Her goal was to run a 5k,” Jen says. “That was so sad to me because all she wanted was to run three miles…that is what kick-started me into running. If I can run a marathon for her, I’m going to do it.”

Growing up in Massachusetts, the fun-loving and outgoing sisters had many similarities – including living with asthma. Jen’s case was mild, but Dee’s caused her to miss school and visit the hospital frequently. That didn’t stop her from making an impression on everyone. She was particularly talented in the sciences, and when Jen encountered her older sister’s teachers years later, they all had a clear memory of her.

“She was in your face and did not care,” Jen says while laughing. “She had no filter whatsoever. If she were thinking it, it would come right out of her mouth!”

The sisters were both skilled swimmers, but Dee’s asthma eventually prevented her from continuing with the sport. She was fortunate the hospital was close to both home and school, which allowed her to quickly get care during frequent asthma episodes. The family still hoped that newer procedures would allow Dee to manage her asthma at home more often.

Dee and Jen with their mom

As this became more difficult, and the list of the activities she could no longer participate in grew longer, she considered a bronchial thermoplasty – an asthma treatment that heats and reduces the amount of smooth muscle in your airway wall. As a result, the immune system no longer tells the throat to constrict when triggered, making it easier to breathe. Unfortunately, due to her health, Dee was not a candidate for the procedure.

High-spirited and persistent despite this setback, Dee shifted her goals to new destinations. During Jen’s senior year in high school, Dee moved to sunny Florida. She felt that the milder climate would make it easier to manage her asthma triggers. Not only did her grandparents live there, but she met her fiancé and had her daughter Olivia, who she called Liv. Dee’s pregnancy was high-risk, and during the birth Liv suffered a stroke –which resulted in cerebral palsy that affected the left side of her body.

“Dee was a tireless advocate for Liv and made sure she got all of the therapies she needed,” Jen remembers. “She would have that girl in therapy all day to make sure she got the best care.”

As Dee settled into Florida life with her fiancé and daughter, her breathing struggles continued. Her oxygen levels were frequently low. Any time her levels were close to average, she would jokingly tell her sister how well she could breathe. Though they kept their conversations lighthearted, it illuminated a constant that had followed Dee throughout her life – she was not getting the oxygen needed to live comfortably.

On December 23, 2016, Dee woke up in the middle of the night struggling to breathe. Knowing she was in the middle of an asthma episode, her fiancé called the ambulance.

Jen and Liv

The resulting brain damage was too much for her to overcome, and she passed on Christmas Eve. Her family returned to Massachusetts – her final resting place – for a celebration of life. Loved ones drove through a giant snowstorm to attend the funeral – and Jen reflects a mischievous Dee would have enjoyed putting them through one last challenge.

“So many people like me, and they all drove through the snow for this?” she imagines Dee saying cheerfully.

Dee’s memory lives on in her daughter and family members like Jen, who carry her spirit and energy. Olivia also lives with asthma, and together with Jen, they run for a better future—one where even those living with the most severe cases of asthma can receive the care necessary to improve quality of life.

Protect Your Lungs While Staying Home During COVID-19

As people spend more time inside during the COVID-19 outbreak, it’s important to recognize and reduce sources of pollution in your own home. Indoor air quality varies, but is often worse than outdoor air quality. However, you can improve the air quality in your home by reducing lung irritants generated indoors. Following some basic guidelines in your day-to-day routines can improve the health of those in your home who live with asthma and other lung diseases.

Cooking

gas stove can worsen indoor air quality

Gas stoves can increase indoor air pollution in your home if not properly ventilated.

People are cooking at home more often during the COVID-19 outbreak. Cooking creates moisture, which feeds mold and mildew growth – a common trigger for those living with asthma. It also exposes you to pollutants like nitrogen dioxide, particularly from gas stoves. Nitrogen dioxide is known to worsen asthma and COPD symptoms. Using a stove fan that vents to the outside can reduce pollution from cooking by 75 percent. Opening windows while cooking can also help keep the air in your home clean.

Bathing/Showering

With people home more often, your bathroom and shower may be used more. Moisture from showers can lead to mold and mildew growth, which may affect the lungs of people living with asthma. Use the bathroom fan to vent extra moisture to the outside. If you haven’t checked your fan lately, now is a good time. Remove any dust and dirt from the fan grill to keep it working properly. If your bathroom doesn’t have a fan, open a window if possible.

Cleaning

Regularly cleaning surfaces in your home is a good practice, and can also help prevent the spread of the COVID-19 virus. Taking some precautions when cleaning can help reduce the amount of indoor pollution created. If you are cleaning with chemical solutions, try to open windows vent fumes from your space. Additionally, you should never combine ammonia and chlorine bleach cleaners. This can produce a toxic gas which could be dangerous, and especially those who live with asthma. If possible, use a vacuum cleaner, which limits dust levels in the air. The U.S. Centers for Disease Control (CDC) also recommends removing your shoes when you enter your home, as they can bring in additional dirt, dust and germs.

Other Daily Activities

A number of other daily activities and products can worsen indoor air quality. Nail polish, candles and paint are just a few examples of products that can affect lungs, especially those of people living with lung disease. Open windows to circulate air in your home, or use these products outside if possible to protect those in your home living with asthma.

Smoking

Anyone in your home who smokes should do so outside, as smoke and vapor from tobacco and e-cigarette products can be especially irritating to the lungs of someone living with asthma. Also, if you live in multi-unit housing, be aware that some of your neighbors may be struggling at this time and their conditions could worsen from second hand smoke. If you are thinking about quitting, there are a number of resources to help you here.

Reduced activity outside the home has generally helped improve outdoor air quality. However, if you live near pollution sources like industrial facilities or major roadways, you may still risk contact with potentially harmful air pollution. Those living with asthma may also be sensitive to outdoor allergies. In these situations, opening windows is still a good option to ventilate your home. However, consider limiting the amount of time you leave them open. If opening windows is not possible, air filters may be another option to keep good air quality in your home. You should only use devices certified by a trusted source, as some filters use ionizing technology which can produce harmful gas inside your home. You can view a list of filters certified as safe here.

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You Can Do Pulmonary Rehab at Home

While at no greater risk of getting sick with COVID-19, people with lung diseases like COPD are at higher risk for becoming seriously ill if they do become infected. Continuing your respiratory therapy is an important way to stay healthy. There are a number of ways you can continue your pulmonary rehab at home.

We put together a number of resources to keep you moving in your own home. We encourage you to talk to your health care provider if you have any concerns about what exercises or activity will work best for you.

Download Fact Sheet: Pulmonary Rehabilitation at Home 

pulmonary rehab exercises

 

Video: Daily Pulmonary Rehab at Home Exercises

Developed by the University Health Network

We recognize the COVID-19 outbreak may be stressful for some people. One of the best things people can do to support themselves is to take care of their bodies. You can do this through regular exercise, meditation, and healthy eating.

Project STRENGTH | “Support for Transitioning Rehabilitation and Exercise Now Going to Home”

Thanks to funding from the Learn More Breathe BetterSM program of the National Heart, Lung, and Blood Institute, we created resources on how you can be healthy at home while living with COPD. Each of these packets includes parts of pulmonary rehab and how to improve daily life.

View our at-home pulmonary rehab resources.

Additionally, please be sure to contact your doctor or healthcare team before performing any new activities in these packets. Remember to share these packets with your caregiver so you can both play a role in choosing to be healthier at home!

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